Send Us Your Story
Your Story Can Help Others
For many years this website lay dormant waiting for us to re-energize and re-vitalize. Of course life got in the way, but now we are focused on a new mission. We decided to try to get patient stories, stories that will inform and educate those in our community and beyond who need to understand and empathize more with those suffering with sickle cell. We believe that awareness is the key to a cure!
How can they learn? Just by reading and grasping the struggles that those with sickle cell face every moment of every day. Anyone ever ask you, “Oh you have sickle cell…so what’s that?”
Now we can answer that question and I will promote these posts online through the many sickle cell communities. So feel free to fill out the form below, or you can email me at firstname.lastname@example.org. Send me a draft and any photos you choose to use.
What Makes Your Story So Powerful
These blogs are powerful when published because they give an insight into your life, possibly for others to research and learn from. They are a personal slice of yourself that you are willing to share with the public. I will only use initials or first name in the post itself. This way your personal information will never be disclosed in any way unless you give permission.
Try to get word count between 350 and 1,200 words.
Talk about your struggles and how sickle cell impacts your life.
Please know that I may need to edit them somewhat for grammar and spelling.
I will resend the document back to you for review and final approval to publish.
Include your name, age, email address and phone number so we can chat if needed.
It is not necessary to speak about the medication you take unless you want to.
Send me a word document attached to my email address or fill out the form on this page.
Feel free to include any photos that you want attached to your post.